Sunday, September 26, 2010

31 Things About My Invisible Illness You May Not Know

1. The illness I live with is: Lupus

2. I was diagnosed with it in the year: 2010

3. But I had symptoms since: I was around 10 or 11 years old.

4. The biggest adjustment I've had to make is: allowing myself to rest and not feel guilty

5. Most people assume: That its not a very serious illness

6. The hardest part about mornings are: Just getting up and moving

7. My favorite medical TV show is: HOUSE

8. A gadget I couldn't live without is: my computer

9. The hardest part about nights are: wondering what symptoms/challenges I will face the next day

10. Each day I take __ pills & vitamins. (No comments, please) 10 prescription pills/ no vitamins

11. Regarding alternative treatments I: would be interested in yoga, meditation, accupuncture

12. If I had to choose between an invisible illness or visible I would choose: ridiculous question..this is what I have I will deal with it.

13. Regarding working and career: I am not working right now

14. People would be surprised to know: how destructive lupus can be

15. The hardest thing to accept about my new reality has been: adjusting to taking medications every single day

16. Something I never thought I could do with my illness that I did was: haven't figured this one out yet

17. The commercials about my illness: I heard there had been a commercial recently , haven't actually seen one yet.

18. Something I really miss doing since I was diagnosed is: I dunno.

19. It was really hard to have to give up: life as I knew it

20. A new hobby I have taken up since my diagnosis is: haven't yet but would like to learn more card games maybe join a club

21. If I could have one day of feeling normal again I would: spend a day with my boys doing whatever they wanted

22. My illness has taught me: to take care of me, and listen to what my body tells me to do or not do.

23. Want to know a secret? One thing people say that gets under my skin is: it could be worse , because yes it could be, we hope it wont.

24. The harshest moment: Telling my sister I had Lupus and realizing she could care less.

25. The part that makes me happiest: when people are truly supportive.

26. My favorite motto, scripture, quote that gets me through tough times is: don't reject...just accept..its already happened ..now learn to cope.

27. When someone is diagnosed I'd like to tell them: learn as much as you can, take your medications, listen to you body.

28. Something that has surprised me about living with an illness is: I am LIVING with an ilness :)

29. The nicest thing someone did for me when I wasn't feeling well was: just showed they cared and tried to make me feel better

30. I'm involved with Invisible Illness Week because: it's important

31. The fact that you read this list makes me feel: worth while

4 comments:

Kim Ayres said...

Good to see you blogging again.

Can I make one wee suggestion? Please change the colouring. Light writing on a dark background is much harder to read than dark writing on a light background :)

karatemom said...

Hey Kim thanks for stopping over..I would change it but I cannot for the life of me find out where in there..It has been so long that I just left it the same way as it used to be just changed my focus.
If I figure it out I will give it a go. thanks :)

Sarah Jane said...

I can see it okay, it's better than some blogs where the background is white and they write in yellow or teal!! Super annoying :)It's taken me forever to learn how to change mine. Click on settings from your dashboard, and fiddle around in there. Hope that helps! Yes, fiddle is a technical term! LOL :)

karatemom said...

haha..thanks Sarah.